Some Of The Agenda And More
The time has finally arrived for me to tie up loose ends here at home, shore Thomas up for my departure, and gather my courage for a long flight, a very social event (that I'm a little nervous about) and a chance to learn so many things that will benefit all of you and also me as an online health advocate blogger. I wanted to share a little bit of the agenda with you so you can get an idea of what I'll be doing there.
First up will be a lecture by ZDoggMD (Dr. Rubin Damania) called "Meducating & Infotaining--Changing the Culture of Medicine Through Social Media:
(Description) Internationally renowned patient activist, Dr. Rubin Damania is revolutionizing the culture of medicine through the use of social media--eccentric, witty and dynamic; his YouTube channel alone has garnered over a million views. With a perfect blend of humanity, humor, and musical talent, ZDoggMD will inspire others to use their creativity and voice to change the future of healthcare together.
Then there will be another session called:
"Protecting Against Compassion Fatigue"
(Description) Session leaders Dr. Brian Koffman and Kerri Sparling are well-versed in compassion fatigue, an increasingly popular term that applies to emotional burnout of patient advocates, caregivers and even physicians. When leading a community, countless inquiries and comments make advocates struggle to be supportive, while also protecting their own emotional well being.
This is the one I am most excited about. I love my role as caregiver for Thomas and advocate not only for Thomas but for all of you too and learning some tools to use to help everyone will be a very valuable education for me. I will take from it everything that I can and I will be sharing that here with you in the hopes that what I learn will help you too.
There are more sessions about the business side of owning and running an online health advocacy blog and website and I am hoping with the tools they teach in these sessions that I will learn how to reach more people. (For my Facebook followers) My greatest disappointment lately has been that my reach is only just over 100 of you per post and that, to me, is a travesty because that means my message reaches VERY FEW people. I am at a loss as to how to reach more people and anything I can learn to make my reach greater will be very valuable to me. Seeing that my posts reach just over 100 of you is disheartening and without paying good money to Facebook to extend my reach, I am at the mercy of those of you who like, comment, and share my content. It is those of you who interact with my page that extend my reach. The more of you who interact with my posts, the more Facebook will release of those posts to more people. I think the formula for it is this:
For every 10 'likes' on a post that will help me reach 100 people. So if I have 100 'likes' per post, that means a thousand of you will see it.
I have over 5000 (bordering on 6000) page members and the vast majority of them are missing my posts. This fact really and truly breaks my heart. So, hopefully I will learn how to attract more of you to my posts so that the information gets out there further. I am not just talking solely about my personal blog posts but this also applies to graphics and articles I post. With Schizophrenia Awareness Week coming up in May, I am going to need all of you to get the facts and information out there that I create and post. I am working hard on making that week a very educational week but without all of you 'liking', commenting and sharing things, all of what I have done will be for nothing or very little.
So, all in all, the conference is going to be a fantastic learning experience for me and hopefully I will have a lot to share with you. Be sure to watch over the next 5 days to read about what I have learned. I will also be sharing how Thomas is coping while I'm gone. These next few days promise to be eventful and I am looking forward to it and looking forward to sharing.
(Now for the disclaimer from Janssen Global Services and myself: "Janssen Global Services paid for my travel expenses for the conference. All thoughts and opinions expressed here are my own.")
My Most Popular Posts...
It has been a very long journey. It has been heartbreaking. It has been scary. It has been full of uncertainty. It has bee...
(Picture credit: thenextweb.com) I have been gone a long long time. I have been silent here on my blog. I have a reason that is not...
It was hard to choose a picture to showcase for today but I chose this one because of where we were and what it says about Thomas. For...
I look at my boy today and I see a young man caught in a different world than the one I live in. His hair is grown out from its usual short ...
After having been completely isolated from friends for weeks now, on Saturday Thomas got a call from who I like to call "The Good Kids...