First and foremost I want to thank all of you who responded to my post yesterday about the exam Thomas has to do for disability. You gave me such good advice and things to think about and even hope that if he's denied SSI this time around we can give it another shot and win.
I got ahold of my advocate yesterday and she got right on top of this and spoke with the woman handling Thomas's case down in Boise at Disability Determinations. The woman was ADAMANT about Thomas having that exam. It turns out that all of his medical records were faxed only yesterday so I think the exam was set up based on the lack of records. So, for the moment, Thomas has to have the exam.
I have two thoughts in mind though. The first is that if he's denied then I'm just going to appeal. It's already set in my mind that's going to happen just because they got his medical records so late. The second thing is, though, is that since they just got all of his records (which was YEARS of treatment) I think they'll read through them and possibly cancel the exam altogether. Since the determination that he needs the exam was based on so few records initially then they will be swimming in them starting today going through everything.
My advocate told me that based on everything that she read and has obtained over time, that Thomas's case is one of the strongest she has ever seen. That's good news. She also said that this is the fastest turnaround time she has ever seen where Boise gets the paperwork and goes ahead and schedules the exam so fast. My advocate told me that most of her people won't even see doctors until January or February so Thomas's December 9th appointment shows that they are really trying to push his case through. She say she's certain we'll have an approval by January. I still think it remains to be seen.
She also told me that she's certain I'll get to sit in on the appointment. This may be tricky for me because one of you suggested that I can't saying anything leading Thomas to answer. The problem is, that's the way things go. Often in his therapy I'll say,
"Thomas, you need to tell Dr. K. about what happened last week."
"Thomas tell him what you told me about that demon thing."
The thing is, if I don't do that he won't talk at all or will just sit and answer questions with a yes, or no, or I don't know. Either that or he'll leave out pertinent information about his symptoms. Dr. K., Thomas and I have an understanding that I act as his memory and often as his advocate in that I make sure the important things get talked about. So, sitting in a meeting, like this exam, and keeping my mouth shut will be a real test for me since I'm not usually a quiet person when it comes to letting doctors know what Thomas deals with in his day to day life.
I guess ultimately it's in the hands of the big, bad government so little ol' me will have to sit back and shut up unless I'm asked to speak. Not my strongest suit but one I will acquiesce to if I must. One thing that will happen for sure though is that I am going to bring CURRENT records from Dr. K. about Thomas's new demon delusion and the dissociation because Social Security doesn't have records that current. They only have up until the end of September and A LOT has transpired since then.
The wheels are in motion and that is so good so I hope nothing but the best comes from all of it.
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