Sunday, February 02, 2014

Super Bowl Sunday & Other News

First of all I am shocked that I found a picture of a cup of coffee with some kind of goodie to go with it with my team's colors on it. Yes, I am going to be a Seahawks fan today in the Super Bowl. I grew up near Seattle Washington so the Seahawks have always been the team I have rooted for so I am continuing to do so today. :) I am curious, for those of you who care about the game, who are you rooting for? Let me know in the comments section.

As for yesterday with Thomas, things with him went really well. Remember that burger I was trying to get him to eat the other day? Well, he ate it for breakfast. Go figure. He also went over to a friend's house for the first time in a couple weeks so I happily sent him off yesterday to go be social. He's been cooped up in his room for days and days so getting him out and especially into a social situation made me very happy. Also, he was in a decent mood most of the day and was very patient with me when he was home so I was thanking God for that. It was a good day. We needed it.

When my mom and I were coming home from a particularly rough visit with my dad, my mom had to pull over for a passing, speeding ambulance. Inside I could see the EMT's working on the patient. It appeared that they were giving him CPR. The sight of that made my heart drop because of the incident with Thomas the other night. Part of me still thinks I should have called 911 but what's done is done. Needless to say, when I got in the house, I went straight to Thomas and hugged him very hard. He was annoyed, which cracked me up in a way, but I didn't tell him why I was squeezing him to death so he was allowed to be put out. All I knew in that moment was that I was thanking God to be able to be holding my boy and that he never ended up in the back of an ambulance fighting for his life.

The 911 question has stuck with me because of an email that Dr. N. sent to me about the mix of medications. I wanted to share the content of it with you here. The fact that he put into words something about calling 911 made me scared and has made me really examine what I will do if I am ever in a similar situation with Thomas again. Here is the email from Dr. N.. Before you read it, some of you have asked about Thomas' meds and offered ideas. This email outlines Dr. N.'s possible intentions for Thomas coming up:
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Yes, let's stop the propranolol. The clozapine can lower blood pressure, as can the lorazepam and the propranolol, and that's probably what caused his dizziness and fainting. I would also advise calling an ambulance if this happens again without the propranolol and the lorazepam.

This might keep us from increasing the dose further for a little while. Sometimes we even go up over 450mg of clozaril, but getting there takes time, if someone is having so many side-effects. When we meet next week we should talk about whether he and you feel it's time to try something different, if waiting for him to get used to each dose is not an option right now. If switching seems more appealing, I think Abilify or Latuda are good options. We can typically avoid the need for hospitalization, if we plan the transition carefully.
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So there you have it. Straight from the doctor. So, I am looking forward to that meeting on Tuesday and seeing what we come up with as a team. He also mentioned in a later email that if Thomas needs to take the lorazepam that we need to stagger the dose of clozaril 2 hours apart from the lorazepam. It's guaranteed I will never put them all together again. I learned my lesson.

That's about it for today for me. I wanted to update you guys on Dr. N.'s intentions and let you know how Thomas did yesterday. I was the only one having a hard time yesterday, even still, because I often find it hard to let go of or come down off of a stressful event. Let's face it, it's been stressful for weeks so yesterday, for me, was just residual. Hopefully today goes well too, for all of us.

Again, if you're a fan of the game today, let me know in the comments section who you're rooting for and if you have any other input on this post, leave it there too. I am trying to reply to as many of you as I can so I'm really liking having your input.

Have a good day! :)
-Melanie

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